Project in Progress

MEETING WITH THE PARENTS

The NDU Foundation hosted a meeting with parents, families, patients and youth
technical experts, between the 18th and 20th of October 2024. Around 50 families with retinoblastoma patients aged between 15 months up to 50 years attended the meeting. The 10 guests (2 oncologists, 3 ophthalmologists, 1 software developer, 1 anesthesiologist, and 3 representatives from similar projects) attended the round table with participants and discussed many unresolved issues. The meeting was followed by some practical activities.

PILOT TEST #1

As we proceed with the development of the FunCamps Digital platform, we target to reach parents and those addressing children having retinoblastoma. Thus, the FunCamps shall provide activities where parents and children will connect, build on their relationship, and briefly forget about difficult moments in order to enjoy their time together.
For this reason, we tend to test activities developed together with parents and children.
On the 20th of October 2024, the NDU Foundation, together with Artistes du Monde for Kids, implemented activities to test the usability of the material developed so far.